Using Fiction To Help Kids Learn About Alzheimer's
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Reading Makes Learning Fun
It's estimated that 20 million American families have a relative suffering from Alzheimer's. While it's hard for adult children to deal with the ravages of this disease on their aging parents it can be even harder for grandchildren to understand what's happening to their beloved Grandma or Grandpa. This article will discuss several books that are appropriate for children aged 4-12 and will suggest activities that can be done with the Alzheimer's patient and other family members.
Younger children will enjoy the intimacy and one on one attention of being read to and the books will help promote meaningful discussions about Alzheimer's. Older children may wish to read the books themselves, but should still be encouraged to talk about what they've read and ask questions they have about Alzheimer's.
"Always My Grandpa: A Story for Children About Alzheimer's Disease"
Always My Grandpa: A Story for Children About Alzheimer's Disease by Linda Scacco, is a gentle portrayal of the early effects of Alzheimer's on patient and family. Daniel and his mom spend every summer at Grandpa's beach house, but this year things are different because Grandpa's symptoms are getting worse. Daniel learns that Alzheimer's makes it hard for Grandpa to remember basic things such as where his clothes are, and that eventually he will not remember who Daniel is, but he will remember things that happened a long time ago.
Suggested activity: Have child pretend to be a reporter and interview the Alzheimer's patient about his childhood. If possible, let the child record the interview.
"What's Happening To Grandpa?"
Maria Shriver's, What's Happening to Grandpa? walks a girl named Kate through a beginning understanding of her Grandpa's condition. While Grandpa's memories are still intact, young Kate helps him create a scrapbook. Much information about Alzheimer's is seamlessly woven into the story, and Kate asks family members questions that children often have such as whether she and mom will eventually get Alzheimer's. The book also contains an excellent list of resources and organizations and was endorsed by Nancy Reagan.
Suggested activity: Have child create a scrapbook with the Alzheimer's patient. If the patient isn't alert enough to participate have another family member help the child create a memory book about them.
"Faraway Grandpa"
In Faraway Grandpa by Robert Karim, a young girl learns that even though Grandpa no longer remembers her name, he can still sing his favorite song with her-Danny Boy, which helps them stay emotionally connected.
Suggested activity: Have a sing-a-long at the next family gathering that includes the Alzheimer's patient. Sing simple tunes like Row You Boat or some of the patient's favorite childhood songs. Record or videotape the singing and make a copy for the patient to take home with him.
"An Early Winter"
In "An Early Winter" by Marion Dane Bauer, 10 year old Tim idolizes his grandfather and the two share a love of fishing. As Tim's mother, stepfather, and grandmother make plans to care for his ailing grandfather, Tim, who's in denial about the old man's deterioration, plots his own plan to "save" him. The two set off on a fishing trip which Tim believes will prove his grandfather can still function normally. Instead, Tim must deliver both of them to safety and while doing so, learns to come to terms with his Grandfather's limitations.
Suggested activity: Plan family outings that the Alzheimer's patient can participate in with the supervision of adults and the help of the child.
Keep It Fun
Reading, and/or being read to, creates a relaxed, loving atmosphere that encourages the child to ask questions. Books written from the child's point of view help kids identify and empathize with the difficulties that the young hero or heroine is going through and teaches them fun and compassionate ways to interact with their own afflicted grandparent.
Alzheimer's Disease Resources
- Alzheimer\'s and the holidays: Find real joy by simplifying - MayoClinic.com
Adjust expectations, and people with dementia and their caregivers could better enjoy the holidays. - Alzheimer\'s: Helping children understand the disease - MayoClinic.com
Alzheimer's and kids Ease your child's fears and answer his or her questions. - Alzheimer\'s Association
Alzheimer's Association - Alzheimer's Association
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An excellent practical hub that can be very helpful. I appreciated the activity to help apply the learning--a great way to bond the children with their grandparent (or any other significant adult with Alzheimer's in their life.)
What a wonderful, gentle way to introduce your child to a serious condition. The books you have chosen are terrific. They not only help them understand what is going on and help them to bond to the grandparent but they help them feel they are not alone. Wonderful hub. Voted up and awesome.
Oh what a great idea. We have been faced with Alzheimers in our family and it was all to obvious over the holidays. My kids approached me and ask, Mom what's wrong with Grandma? Tough questions and thanks be to you for such wonderful information. Blessings. :)
What a brilliant way to introduce children to the subject. Sadly this devastating illness is becoming more and more common.Thank you for sharing this. I am sure that each one of us know someone who has in some way been touched by Alzheimers.
This is a very touching hub. I had no idea about such books to help children understand Alzheimer's disease better. Our family is going through this with my own father. Thank you for the information.
Thanks for the recources. People of all ages need to understand the complications associated with the illness. Love and understanding are vital . . .
This is an excellent resource for parents with Alzheimer patients in their family. Fiction is such a gentle way of teaching, and is something that is less harsh for kids. Great hub!
What a lovely, heartfelt article. It was so heartbreaking for my children when my grandmother's memory began to fade until she no longer knew her own family. I still remember my son's face when she looked at him blankly and called him by her brother's name. Reading children's books like these would have explained the issue and perhaps made it easier for my children. Beautiful article!
I must have been asleep for a very long time, Gail and missed out on these hubs when you wrote them. Another excellent and useful hub to help young ones deal with a favorite grandparent who is 'fading' away in confusion. Wonderful writeup and choice of learning tools. Great job!
Hi Happy,
You checked out one of my Hubs, so I'm returning the favor and boy, am I glad I did! I'm a caregiver for the elderly and most of my 'clients' have some sort of dimentia, mostly Alzheimer's though. From early onset to late stage. There is one woman who has several young granchildren and I can tell they don't understand fully why their grandma is acting the way she does. I only know the facts about Alzheimer's in a clinical sense and wasn't sure how to convey to these kids what she's going through...in "kid's terms." I'm gonna buy one or two of these books and learn what I can to help them.
Thank you so much for sharing such valuable information. You're a blessing.
peace to you...always,
Diana
Dear Gail,
Wow, I love this piece. I am definitely bookmarking for future reference. I am a Maria Shriver fan-- love this book lots and appreciate the other recommendations.
Just today my students gave presentations on "caregiver burden" and "differentiating depression, delirium and dementia in the elderly"... Both groups spoke of the sandwich generation (even the clubsandwich, where boomers are caring for kids and parents, and grandkids...) As kids are seeing these confusing behaviors under their roof, this article is amazingly valuable in helping educate them in a nonthreatening & sensitive manner.
Voted UP & UABI-- thanks so much, mar.
Very well done. It is such a sensitive subject, but anything we can do to prevent its stages, well worth while. Voted up.
There is a great short film whose subject matter is about Alzheimer: http://funandeducational.com/?p=1223
The film is very powerful and is suitable for kids because the protagonist of the story is a kid named Lisa whose Mom started to have Alzheimers.


![Always My Grandpa: A Story for Children about Alzheimer's Disease [Paperback]](http://ecx.images-amazon.com/images/I/5145bzki%2BQL._SL75_.jpg)

























Peggy W Level 8 Commenter 19 months ago
What wonderful sounding books to help kids adjust to the situation of grandparents or others in their families going down that terrible path of Alzheimer's. Once again this hub is useful and valuable. Rating it so!